Last updated: (July 14, 2016)
Mendus ("us", "we", or "our") operate (the "Site"). This page informs you of our policies regarding the collection, use and disclosure of Personal Information we receive from registered users (“Users”) as well as unregistered visitors (“Visitors”) of the Site.
Categories of information collected and how they are managed
Information is collected from Users and Visitors in several ways depending on how they interact with the Site.
Upon registration, the purpose of which is to issue the Visitor a unique member ID, the Visitor has the option to enter an email address, or, register without an email address. Note we never ask for names or other identifying information during registration. Registration Information is collected via an html form and is sent to and stored in a spreadsheet hosted by Google. If email addresses are included during registration these are separated from the associated User IDs and stored offline. The form retains only a list of available and taken IDs.
Users may enter information on the forums. It is not necessary to login to enter information. We do request that Users provide their member ID along with their message. We request that members refrain from entering personal information other than their member ID (e.g. names, email addresses) on the forum.
We request that Visitors, who are by definition unregistered, refrain from using the forum. If Visitors enter data on the forum Mendus does not assume any responsibility for the content or the implications (for the visitor) of posting the content. We also reserve the right to remove the content at any time without notice or explanation.
Users may enter data when participating in a study at Mendus. These data generally take the form of symptom ratings, energy levels, treatment intake levels and questions specific to the study the User is involved in. Each data entry submission must include a member ID to allow proper sorting of data. Visitors are not permitted to enter study information as they do not have member IDs which are required to submit the form. A study is distinct from a survey.
Study data entry forms are generated using Google Forms and the data submitted is stored in a spreadsheet hosted by Google. In order to receive data from Users and be available for viewing by Users (without any sort of login or passwords), these sheets must be set as accessible to anyone with a link (which simply means anyone who submits the form). This data is not securely protected. However, our studies are designed such that there are no personal identifiers (other than member IDs) attached to these data. Hence the importance of keeping your member ID to yourself.
Upon registration individuals are asked to complete a preliminary survey for their community. These surveys typically contain more detailed and sensitive information than studies, as described above. Occasionally we will also host surveys that are not a community’s preliminary survey. For example, our vitamin B12 deficiency community has a History of B12 Usage Survey.
In addition to the information and data Users and Visitors can enter themselves voluntarily in text fields or surveys at Mendus, information is collected (by Mendus or 3rd party websites) via cookies and tracking software. A cookie is a small piece of text sent to your browser by a website you visit. It helps the website to remember information about your visit, like preferences and other settings. That can make your next visit easier and the site more useful to you. Cookies play an important role. Without them, using the web would be a much more frustrating experience. We use Google Analytics to collect and monitor information about users’ sessions. It is possible to opt out of cookies using blocking programs through your internet browser. However, this may also limit the functionality of Mendus services.
We may use your Personal Information (email address) to contact you with newsletters and or announcements if you selected that option upon registering.
The security of your Personal Information is important to us, but remember that no method of transmission over the Internet, or method of electronic storage, is 100% secure. While we strive to use commercially acceptable means to protect your Personal Information, we cannot guarantee its absolute security.