We ask that all new members complete a preliminary survey when they first register. The instrument we use for the FM community is the revised Fibromyalgia Impact Questionnaire, developed in its original form by Drs Carol Burckhardt, Sharon Clark and revised by Robert Bennett at Oregon Health & Science University in Portland, Oregon. The FIQ attempts to capture the total spectrum of problems related to fibromyalgia and has been used extensively in research. This survey will likely be used to 'help' analyses of other studies by providng us basic demographic and symtpoms details. Complete the Survey.
Preliminary FM Survey
The MitoQ study has been our largest study to date, by far. This is undoubtedly due to the notoriety of the person who proposed and advertised it (Cort Johnson) and the proprietor (MitoQ Limited) who supplied 50 ME/CFS and 50 FM patients with their product for free. We managed to pull off a two-disorder, randomized, double-blind, placebo-controlled, crossover trial with another ~50 people joining an open-label condition. Group results will appear here soon pending publication. More info about the study.
The Coenzyme Q10 study was launched around the same time as the MitoQ study. We hoped it would be popular and allow a comparison with MitoQ. Only a few people have completed it at this point. The results are in the process of being prepared. More info about the study.